Using real life stories, Geert Bettinger’s new book Moving on by Standing Still: A Different View of ‘Problem Behavior’, demonstrates how damaging it is when care professionals assume they know what’s best for people living with intellectual or cognitive disabilities, such as Alzheimer’s disease. Throwing the gauntlet at mainstream care practices, Bettinger describes compelling examples […]
Imagine a dementia-inclusive community; a place where each person’s uniqueness is valued, deep relationships flourish and differences are embraced. Imagine a dementia-inclusive community where each person’s perceptions and experience of the world, while often different than our own, are taken into account and honored.
A historical review of major warning signs for the current crisis over the past 20 years (1997-2018) including, among others, findings from government investigations and large-scale research studies as well as opinions of leading national experts. The lack of basic protections for vulnerable and frail residents – many of whom living with dementia – in this rapidly growing but registration-only assisted living industry in Minnesota places these individuals at risk of abuse, neglect, avoidable accidents, financial exploitation, and other forms of harm.
In her December 2017 post, “Stealing Hope,” Anne D. Basting passionately challenges the fear and stigma-inducing “tragedy narrative” that distorts how people living with dementia are seen within the broader culture. The two of us were especially inspired by Anne’s closing words, “Family members and friends…can learn to shift toward creativity to find emotional connection, to […]
The full text of Eilon Caspi’s recent journal article “Trust at stake: Is the “dual mission” of the U.S. Alzheimer’s Association out of balance?” is now available for free thanks to an anonymous donor seeking to raise awareness of the gross imbalance of effort and funding between the Association’s dual mission of seeking cure and best care.
I have not agreed with the Alzheimer’s Association’s fear-based, stigma-fueling marketing campaign for many years. But exploiting Gene Wilder feels particularly egregious.
All of these can be perceived as ‘deficits’ but they can also be perceived as changes. Using this viewpoint, there is room for the difficulty associated with these changes to be challenging, yet fruitful. Deficits call to be fixed. Changes call to be embraced and understood.
We owe it to ourselves and our communities to stand up and demand that, while we await development of a cure or treatment for Alzheimer’s Disease, resources are to also be spent on figuring out how to live well with dementia.