Reimagining Dementia: A Creative Coalition for Justice is an international group of dementia activists and allies – health professionals, people living with dementia (young and old), carers/care partners, family and community members, advocates, artists, academics, policy makers and others – who share a diverse and humanizing vision of care and support that promotes inclusion, relationality, creativity, […]
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How improvisation gives us a powerful tool for moving from “How things should be” to “What can we create given what exists?” – and the most humanizing shot at relating to the strangeness, the fluidity and the uncertainty of dementia (and pandemic life) in ways that promote intimacy and growth rather than frustration and humiliation.
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Over the last year, we’ve had the honor of being part of a growing movement of care partners, people living with dementia, health and helping professionals, artists, activists and advocates across the U.S. and globally who are bringing new, radically humanizing visions of care and policy to the dementia conversation.
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Over the last two years, my East Side Institute colleague Dr. Susan Massad and I have had the honor of leading “The Joy of Dementia” workshops around the country. One former college professor whose diagnosis was still recent, began sharing the experiences and emotions she was going through, and ended by saying, “What can I say, it’s just weird.”
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In her December 2017 post, “Stealing Hope,” Anne D. Basting passionately challenges the fear and stigma-inducing “tragedy narrative” that distorts how people living with dementia are seen within the broader culture. The two of us were especially inspired by Anne’s closing words, “Family members and friends…can learn to shift toward creativity to find emotional connection, to […]
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