The story is told from the perspective of a 10-years-old African American girl about her grandmother who lives in advanced stages of Alzheimer’s disease in a nursing home. The granddaughter is told that there is no point of visiting her grandmother because “she is no longer there.” Her love for her grandma compels her to visit her. Their visits may help shift perceptions from stigma to hope.
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For decades, it has been very difficult to gain access to completed mistreatment investigation reports in Minnesota long-term care homes. Elder Care IQ was developed to bridge this major gap. The article described 50 reasons why this new online tool is needed.
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“By not asking for the data to which we are entitled, we sacrifice our ability to learn what our government is doing. Real transparency is more than waiting for the government to hand out data to us. Real transparency involves demanding data from the government and fighting, if necessary, to force the government to provide […]
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A poem about the Alzheimer’s drug Aduhelm and Medicare’s upcoming (April 11 2022) final coverage decision
Continue Reading* A reflection on STAT article: Joseph, A. (June 16, 2021). Q&A: The CEO of the Alzheimer’s Association on the approval of Aduhelm – and why critics should stop dwelling on the decision. Link: https://www.statnews.com/2021/06/16/qa-ceo-alzheimers-association-on-aduhelm/ A lot has been said and written in recent weeks about the FDA controversial approval of the drug Aduhelm and the […]
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Some assisted living residences (ALR) provide good and safe care to elders. Most directors of admissions are honest and caring. However, a substantial portion of ALR provide poor and dangerous care and use deceptive marketing practices. This poem is based on the devastating experiences of hundreds of families whose loved ones were neglected, abused, and financially exploited in ALR in Minnesota.
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The blog post describes the potential implications of not having the voice of elders an integral part of decisions about their care and life.
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In at least half of the states, LTC homes are shielded to varying degrees from civil liability for COVID-19 claims. As Minnesotans are waiting to see whether the state will grant legal immunity to LTC homes, in effect, extensive COVID-19 liability shields are already in place. This fact, which does not receive adequate attention in the media, is addressed in this blog post.
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