Everybody Knows
A poem about the Alzheimer’s drug Aduhelm and Medicare’s upcoming (April 11 2022) final coverage decision
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Trust at Stake: Alzheimer’s Association’s role in FDA’s approval of Aduhelm
* A reflection on STAT article: Joseph, A. (June 16, 2021). Q&A: The CEO of the Alzheimer’s Association on the approval of Aduhelm – and why critics should stop dwelling on the decision. Link: https://www.statnews.com/2021/06/16/qa-ceo-alzheimers-association-on-aduhelm/ A lot has been said and written in recent weeks about the FDA controversial approval of the drug Aduhelm and the […]
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The Promise
Some assisted living residences (ALR) provide good and safe care to elders. Most directors of admissions are honest and caring. However, a substantial portion of ALR provide poor and dangerous care and use deceptive marketing practices. This poem is based on the devastating experiences of hundreds of families whose loved ones were neglected, abused, and financially exploited in ALR in Minnesota.
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Without the Voice of Elders
The blog post describes the potential implications of not having the voice of elders an integral part of decisions about their care and life.
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A Perfect Storm
In at least half of the states, LTC homes are shielded to varying degrees from civil liability for COVID-19 claims. As Minnesotans are waiting to see whether the state will grant legal immunity to LTC homes, in effect, extensive COVID-19 liability shields are already in place. This fact, which does not receive adequate attention in the media, is addressed in this blog post.
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20 Reasons Why We Need to Know the Early Life History of People Living With Dementia
1. The human right of all people living with Alzheimer’s disease and other forms of dementia is to be with people who know their life story including cultural habits and religious faith (Bell & Troxel, 2003). 2. Developing friendships, relationships, and trust with people with dementia is the foundation of person-directed care (Bell & […]
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Buried (Not) Forever
Long-term care residents living with dementia labeled as “aggressive” when they engage in distressing and harmful “resident-to-resident incidents” are in reality expressing real human needs and frustrations that are not being met by understaffed, undertrained, and inadequately supervised direct care staff members.
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Moving on by Standing Still: A Different View of ‘Problem Behavior’: Book Review
Using real life stories, Geert Bettinger’s new book Moving on by Standing Still: A Different View of ‘Problem Behavior’, demonstrates how damaging it is when care professionals assume they know what’s best for people living with intellectual or cognitive disabilities, such as Alzheimer’s disease. Throwing the gauntlet at mainstream care practices, Bettinger describes compelling examples […]
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