1. The human right of all people living with Alzheimer’s disease and other forms of dementia is to be with people who know their life story including cultural habits and religious faith (Bell & Troxel, 2003). 2. Developing friendships, relationships, and trust with people with dementia is the foundation of person-directed care (Bell & […]
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Long-term care residents living with dementia labeled as “aggressive” when they engage in distressing and harmful “resident-to-resident incidents” are in reality expressing real human needs and frustrations that are not being met by understaffed, undertrained, and inadequately supervised direct care staff members.
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Using real life stories, Geert Bettinger’s new book Moving on by Standing Still: A Different View of ‘Problem Behavior’, demonstrates how damaging it is when care professionals assume they know what’s best for people living with intellectual or cognitive disabilities, such as Alzheimer’s disease. Throwing the gauntlet at mainstream care practices, Bettinger describes compelling examples […]
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A historical review of major warning signs for the current crisis over the past 20 years (1997-2018) including, among others, findings from government investigations and large-scale research studies as well as opinions of leading national experts. The lack of basic protections for vulnerable and frail residents – many of whom living with dementia – in this rapidly growing but registration-only assisted living industry in Minnesota places these individuals at risk of abuse, neglect, avoidable accidents, financial exploitation, and other forms of harm.
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The full text of Eilon Caspi’s recent journal article “Trust at stake: Is the “dual mission” of the U.S. Alzheimer’s Association out of balance?” is now available for free thanks to an anonymous donor seeking to raise awareness of the gross imbalance of effort and funding between the Association’s dual mission of seeking cure and best care.
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