Long-term care residents living with dementia labeled as “aggressive” when they engage in distressing and harmful “resident-to-resident incidents” are in reality expressing real human needs and frustrations that are not being met by understaffed, undertrained, and inadequately supervised direct care staff members.
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The full text of Eilon Caspi’s recent journal article “Trust at stake: Is the “dual mission” of the U.S. Alzheimer’s Association out of balance?” is now available for free thanks to an anonymous donor seeking to raise awareness of the gross imbalance of effort and funding between the Association’s dual mission of seeking cure and best care.
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I have not agreed with the Alzheimer’s Association’s fear-based, stigma-fueling marketing campaign for many years. But exploiting Gene Wilder feels particularly egregious.
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This week PBS will air Alzheimer’s: Every Minute Counts, a documentary framed as “an urgent wake-up call about the national public health threat posed by Alzheimer’s disease.” While it’s true Alzheimer’s disease poses a public health challenge, much of the suffering experienced by people living with dementia is socially imposed on them by the tragedy-only narrative exemplified in films such as this.
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I promised to follow-up with additional blog posts about my experience at the Alzheimer’s Disease International 2015 conference in Perth, Western Australia. Here is a quick post with full video from my plenary session.
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Alzheimer’s overwhelmingly negative brand associations have made it difficult to galvanize public support demanding effective treatments and prevention.
Continue ReadingTo much fanfare from the Alzheimer’s disease research lobby, the Obama administration announced plans this week to dramatically increase federal funding on Alzheimer’s. But advocates for those who live with the disease are asking why more isn’t being done to educate the public and improve care and living conditions for the more than 5 million people who live with various forms of dementia, of which Alzheimer’s disease is only one type.
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