ChangingAging is excited to share the inaugural issue of The Voices of Dementia, a new journal of and by individuals living with the symptoms of dementia edited by Richard Taylor, Ph.D. Read Richard’s introduction below and click here to download a free PDF of the July issue of The Voices of Dementia. Click Here if you need to download the Free Adobe Reader.
My name is Richard Taylor, and I live in Cypress, Texas together with my spouse, and my symptoms of dementia. I have long wanted to collect the thoughts, feelings, and experiences of individuals living with the symptoms of dementia from various communities around the earth. My limited experience with creating chat rooms around the world convinced me that while culture plays a strong role at the edges, the core life experience/myths/fears/stigmas attached to those living with the symptoms of dementia is amazingly consistent across oceans, continents, classes, languages, and generations.
My wish is that over time some of these universal “truths” will begin to take shape and gain traction around the world through efforts like this to connect people living with dementia with each other, and then more honestly/directly connecting them with the professionals and care partners who seek to support them.
My hope is that quite quickly this journal will be translated and published in many, many languages and published on country specific web sites. I am looking for volunteers/organizations that might be willing to take on this task for the people they serve, in the language they speak.
As for myself, I find all the traveling and speaking about my own experiences is wearing on my own personal quest to engage my symptoms as fully as I can, increasingly I find myself depending on others around me to enable me where I can no longer do it by myself. I will still stand up and speak out; I will still travel – just not so much. I Hope to write more, publish more, engage more people to think for themselves about this massive public health crisis/pandemic caused by dementia.
We congratulate Richard on this first issue and will be sharing content from the journal on ChangingAging in the coming weeks.
About Richard Taylor
Richard Taylor, a retired Psychologist, was diagnosed with Alzheimer’s-type dementia in 2001 at the age of 58. Now 65, he is a champion for individuals with early-stage and early-onset Alzheimer’s disease, and author of the book Alzheimer’s from the Inside Out(Health Professions Press, 2006). He serves on the board of the Houston and Southeast Texas chapter of the Alzheimer’s Association and has started over 50 chat rooms worldwide for people with Alzheimer’s disease and their loved ones. Learn more at http://www.richardtaylorphd.com/