The shocking video of a United Airlines passenger who wouldn’t give up his seat being forcibly dragged from the airplane has the Internet world buzzing. And yet, after a quarter century in and around the care of older adults and those living with dementia, I can only see some very disturbing parallels. This is going to be a rough post, but so be it.
Consider the following:
United calls security police who forcibly remove a man from his seat when he does not wish to give it up. He is injured in the process.
A person who does not wish to be bathed is forcibly showered against her will by a group of staff members.
United’s CEO adds insult to injury by stating the person was “belligerent,” as if raising his voice was an excuse for a physical assault.
Reports of forcing care on “belligerent” residents abound, as if that justifies the same treatment.
Make no mistake; the United incident was a physical assault. And there will be a lawsuit, perhaps a fine as well.
If a person declines care (see the federal regulatory F-tag about resident rights) and it is forced on her, this is also an assault. How does removing a person’s clothes or forcing her to shower against her will become okay if it happens within the confines of a nursing home? And if we force ourselves on a person against her will and get injured in the process, who is to blame?
United used the need to move crew and the airline’s policy (all US airlines have this policy, by the way) as justification for the inhumane treatment of the doctor on board.
What is most disturbing to me is that such treatment would likely not raise the amount of outrage in a viral nursing home video as the United video did. Too often, it’s “business as usual.” Also disturbing is that managers and even family members are often complicit in forcing such treatment, justifying it as “for the person’s own good.” If someone grabbed a piece of cake out of your hands and shoved a salad in your mouth because it was “for your own good,” how might you respond?
There were a number of ways in which United could have approached this differently, from finding the four passengers to be bumped before boarding, to offering a larger payout, to a more nuanced negotiation with the person, to finding other crew members to move to Louisville.
In aged care, there are also many options. But like those above, they take time, an empathic listening ear, and creativity. (Just one simple example is that offered in the Bathing without a Battle video, which was sent to all US nursing homes 15 years ago, but for some reason most of the people I‘ve met have never seen.)
And please don’t tell me you do not have time to use a slower, gentler or more creative and collaborative approach. If that is the case where you work, be aware that your license—and your humanity—is on the line, every single day.
Finally, (yes I am going there) we have to talk about “intersectionality”; that is, the concept that the many “isms” in our society can have a cumulative effect on people’s rights. This is not an allegation, but a question: Is it possible that the response of the Chicago officers could have been influenced by the man’s ethnicity and accent?
When it comes to rights in aged care, we need more studies to determine whether—in addition to ageism and able-ism—our approach to those in our care can also be affected by the many other labels they carry.
In my evolving understanding of how best to support people living with dementia, I came to realize several years ago that it was never really about antipsychotic drugs—it was about well-being. And more recently, I have come to realize that it wasn’t really about well-being either—it’s about humanity and human rights.
This article gave me a great insight on how the care we provide to those who have dementia can be improved to make it more dementia friendly. As an occupational therapy assistant student, I have learned the importance of using therapeutic use of self to encourage patients and allow my patients to understand why it would benefit them to participate in therapy. To take a shower, for example, would benefit the patient but if they refuse to take one it may only take some more time to talk to the patient to educate and encourage them to take one rather than just forcing them to take one.
Fascinating and disturbing parallels. Thanks for bringing the important issue it to our attention.
I am an AGNG 320 at UMBC Erickson School of Aging. This topic really sparks my interest from the topics we discuss in this class along with my Psychology of Aging course.
The stigma of nursing homes also concerns me very much. It would be great if we could have the same expectations for nursing homes as we do for child care. In class we have gone into detail about the struggles of nursing home and assisted living facilities. Having a loved one cared for properly could extend their life and relieve so much stress from a family caregiver. With the negative stigma surrounding nursing homes many families are reluctant to use them. Hopefully with the aged baby boomers approaching our society will see where the changes need to be made.
Antipsychotic drugs are euthanasia drugs. They disrupt neurotransmitters. Isn’t that what dementia is about? Specifically dopamine, one of whose pathways manages motor control. Disrupt body messaging and body parts malfunction. The FDA studies indicate that the drug cuts life expectancy in about half.
Keep making us think hard and long about what we’re doing. Olders today will be US tomorrow. Thanks.
Thank-you for this, Al!
You’re quite welcome, Dani.
Civility seems to be an increasingly rare commodity. When we watch the brutal acts inflicted upon each other and then simply turn the channel to our favorite program, then no one is protected. Yesterday, I watched the sentencing of Dylan Roof, while the news of a shooting in San Bernadino scrolled across the bottom of my screen only then to be followed by this news. It’s a bit disheartening to see but if we dare to stand up and become advocates for our human brothers and sisters then our challenges become great opportunities for positive change. Let’s stand together with the confident knowledge that we can do better than this.
Absolutely, Paul. Long-term care is a microcosm of society and should reflect the better angels of our values as much as any other place.
Bingo again Al!
And in full support of what you write, here’s what I imagine LTC life looks like through the eyes of Alzheimer Annie:
http://myalzheimersstory.com/2017/01/08/alzheimer-annie-invites-you-in/
We WILL prevail eventually.
Superb insights, Susan!! You have a very important book here, I believe! Read this post everyone!!
Gee Al, I hadn’t thought of that… But I love the idea. Thanks.
I have a sister in care—she is lucid and seems happy there. I would be heartbroken if I suspected she was being forced to do anything against her will. Yes, it is about human rights and simple humanity.
Thanks so much and keep up the advocacy!