When you think of your life and the record you want to leave behind, do your accumulated possessions, job titles and accomplishments really do you justice? The process of aging can teach us the value of the intangibles in a life story, including the importance of community and the worth of a given moment.
Even without knowing all of the reasoning behind Gene Wilder’s decision to keep his diagnosis of Alzheimer’s disease a secret, one can infer from his family’s statement that stigma was a big factor.
Walking (indoors and outdoors) is something we all do freely, every day, without even thinking about it. Moving away from “lock-down” memory care for people living with dementia not only helps alleviate distress, but also affirms and enables everyone’s basic human right to be able to move freely.
Recently, I posted a provocative argument for considering locked doors as physical restraints. I have received many comments about the post; and as promised, I am following up with a second installment (of three), in which I will give some guidelines for those who wish to take up the challenge.
The problem with “restraints” in long-term care is that in most cases the things we do to increase physical safety help us to feel better, but actually decrease the sense of security felt by the person. So it is with locked doors in memory care homes.
New research validates what we already know — the use of antipsychotic medications to reduce behavioral and psychological symptoms of dementia (BPSD) is not very effective and what we should be doing instead is focusing on meeting the unmet needs of the person living with dementia through person centered approaches.
In a sea of self-help books and self-promoting how-to’s, The Penelope Project: An Arts-Based Odyssey to Change Elder Care is a comprehensive guide, showing us how to work within systems and change them for the better from the inside.
The Alzheimer’s Family Support Center of Cape Cod is a non-profit organization designed to be age- and dementia-friendly, which means that the programs are organized in a way that enables individuals of all ages and disease states to participate in the program.
Bill Thomas and Nate Silas Richardson take on the age old question of mortality as well as a deep dive into caregiver stress when your spouse or partner lives with dementia. They also share a behind-the-scenes look at the latest swing of the Age of Disruption Tour, including how the show dealt with a catastrophic power outage during a live performance in Richmond.
Would it surprise you if I said that the very organizations that are discouraging the abuse of antipsychotic drugs to treat people living with dementia are actually convincing people to use them? It’s a matter of language.
Every few weeks there seems to be a new story about how attitudes towards aging affect the way older minds and bodies function. The latest is irresistibly titled: “Karma bites back: Hating on the elderly may put you at risk of Alzheimer’s.”
While Alzheimer’s creates challenges for those who live with it – and for their loved ones who watch them endure it – dementia should never define a person, or lead them to believe they ought to just give up and submit to it.
As it happens, I received two related news reports from colleagues today. Both concern the current state of affairs with psychotropic drug research, and the dangerous ways in which data is being manipulated and misrepresented.
Subscriber’s to the late Richard Taylor’s e-newsletter Alzheimer’s From the Inside Out had the bittersweet privilege of receiving his last email yesterday with a forward from his brother Jason.
I have decided to coin a new philosophy around the support of people who live with changing cognitive abilities.
This short and not-too-sweet post is an addendum to my guest editorial that was published here in McKnight’s on Friday, July 24th.
“Hello. My name is Richard, and I have dementia, probably of the Alzheimer’s type.” These are the words Dr. Richard Taylor used to open each of his presentations, as he enlightened the world about the lived experience of changing cognitive ability. Richard passed away at his home on July 25th, due to cancer.
Last week I came across the most irresponsible, ill-informed, and inflammatory bit of writing I have ever seen on the topic of dementia.
I believe our top priority is to build all inclusive communities, both for our aging population in general, as well as those living with changing cognitive abilities of all kinds. Here’s why:
I promised to follow-up with additional blog posts about my experience at the Alzheimer’s Disease International 2015 conference in Perth, Western Australia. Here is a quick post with full video from my plenary session.