One of the nicest compliments I ever received for my work came in an unexpected way; in fact, I had to think about it for a while to decide if it truly was a compliment.
Thanks to NPR for identifying this ongoing issue, but we need to also broaden the discussion to look at how our society views dementia, how we have chosen to care for our elders, and the systems that regulate and reimburse that care.
If you are in the mood for a slapped together blog post that is simultaneously alarmist and deeply pessimistic you might want to read Ken Dychtwald’s recent piece on Huffington Post for Alzheimer’s Disease Awareness Month.
I have been advocating that community planners switch to the terms “age-inclusive” and “dementia-inclusive,” as these terms raise the bar by requiring the inclusion of such people in all aspects of community life and planning, rather than simply creating a kind but misguided process of substituted judgment.
We have been graphing the age and dementia distribution for baby boomers for decades, and yet none of our projections have ever extended beyond the year 2050. Why is that?
I recently cautioned in an op-ed that our attempts to reduce antipsychotic drugs among patients with dementia would soon become problematic if we have not also learned how to care differently. And the chickens are starting to come home to roost.
THE EDEN ALTERNATIVE BLOG — A doctor noted for his role as a key architect of President Obama’s healthcare reform reminded us just how narrow the lens of the medical model is when it comes to aging.
Books on dementia are usually addressed not to friends but to family caregivers or professionals. I approached this book with excitement because we rarely see the words “dementia,” “friendship” and “communities” together.
I was privileged to be part of an extraordinary film, Alive Inside by Michael Rossato-Bennett, that documented the small miracles as life re-ignites in the eyes of long-term dementia sufferers when they hear familiar tunes for the first time in years.
In Seattle, community members living with memory loss are rising up as the true spokespeople, and the true experts, on what it means to live with dementia!
A new study from UCSD demonstrates the potential of self-fulfilling prophecy for those who live in a world with a highly stigmatized view of dementia.
What is momentia? Momentia is a joyful proclamation. Momentia declares the new dementia story, a story not of fear, isolation, despair, futility and loss, but a story of hope, connection, growth, purpose and courage.
When I was a teenager, I probably had little expectation that someone my current age would still have a lot of growth left in him. But over time, I have learned that, as Eden Alternative Principle Nine states, “Human growth cannot be separated from human life.”
Every day, we can choose to continue telling the old dementia story, a story that condemns and terrifies, a story that adds burden to an already challenging journey. Or, we can choose to stop and listen. There’s a new dementia story being told.
The new dementia story is brewing, it is ripening, and it is ready to be heard. If we take the time to listen, we may hear a story overflowing with hope, a story not of decline, but a story in which people living with dementia are “on the rise.” This is Roger’s story.
It’s time to re-inject some humanity into the unloving scientism and unjust capitalism of the contemporary dementia industry.
Last week I watched a news report out of Canada that told a different type of story about Alzheimer’s and dementia. It told the kind of dementia story you almost never see in primetime news — a joyful story.
Okay everyone, are you listening to me?? STOP! Just…stop. If there were a “Hitchhiker’s Guide to Dementia”, the first words would still be: “Don’t panic.”
It’s been six months since my last epistle but I have now reached the point where I feel as if I have recovered enough to jump back into the world of dementia advocacy.
A recent New York Times article quoting Dr. Al Power reminds us that people living with dementia have much to teach us about being fully present with one another.