I was privileged to be part of an extraordinary film, Alive Inside by Michael Rossato-Bennett, that documented the small miracles as life re-ignites in the eyes of long-term dementia sufferers when they hear familiar tunes for the first time in years.
In Seattle, community members living with memory loss are rising up as the true spokespeople, and the true experts, on what it means to live with dementia!
A new study from UCSD demonstrates the potential of self-fulfilling prophecy for those who live in a world with a highly stigmatized view of dementia.
What is momentia? Momentia is a joyful proclamation. Momentia declares the new dementia story, a story not of fear, isolation, despair, futility and loss, but a story of hope, connection, growth, purpose and courage.
When I was a teenager, I probably had little expectation that someone my current age would still have a lot of growth left in him. But over time, I have learned that, as Eden Alternative Principle Nine states, “Human growth cannot be separated from human life.”
Every day, we can choose to continue telling the old dementia story, a story that condemns and terrifies, a story that adds burden to an already challenging journey. Or, we can choose to stop and listen. There’s a new dementia story being told.
The new dementia story is brewing, it is ripening, and it is ready to be heard. If we take the time to listen, we may hear a story overflowing with hope, a story not of decline, but a story in which people living with dementia are “on the rise.” This is Roger’s story.
It’s time to re-inject some humanity into the unloving scientism and unjust capitalism of the contemporary dementia industry.
Last week I watched a news report out of Canada that told a different type of story about Alzheimer’s and dementia. It told the kind of dementia story you almost never see in primetime news — a joyful story.
Okay everyone, are you listening to me?? STOP! Just…stop. If there were a “Hitchhiker’s Guide to Dementia”, the first words would still be: “Don’t panic.”
It’s been six months since my last epistle but I have now reached the point where I feel as if I have recovered enough to jump back into the world of dementia advocacy.
A recent New York Times article quoting Dr. Al Power reminds us that people living with dementia have much to teach us about being fully present with one another.
The Eden Alternative and LindenGrove are partners on a grant proposal to fund Dementia Beyond Drugs training based on Dr. G. Allen Power’s award winning book.
When Al Power was in med school and specializing in geriatrics, he would visit his grandmother in a nursing home.
In 2001, the Institute on Medicine released a seminal report titled “Crossing the Quality Chasm” that described healthcare in America as impersonal and fragmented.
I’m amazed by the response to my blog post Alzheimer’s Disease Has a Brand Problem. Here’s a sample of the best comments:
Alzheimer’s overwhelmingly negative brand associations have made it difficult to galvanize public support demanding effective treatments and prevention.
The Wall Street Journal Real Time Economics Blog highlights the financial impact of The Green House model on slowing the cost increase of dementia care.
A recent article in McKnight’s Long Term Care magazine highlights a study that concludes it is safe in most cases to eliminate antipsychotic drugs.
Three years ago, Kennard Lehmann walked out of a neurologist’s office in Sacramento, Calif., newly diagnosed with early-stage Alzheimer’s disease, a prescription in hand and absolutely no idea where to turn for help.
The doctor hadn’t given him a list of resources or discussed how Mr. Lehmann might go about finding them. Knowing nothing about Alzheimer’s, his wife swiped a magazine she had been reading in the doctor’s office to take home and read.
Thus began a journey all too familiar to people with Alzheimer’s — one that Mr. Lehmann, 75, describes as “being put in a box.”