Even without knowing all of the reasoning behind Gene Wilder’s decision to keep his diagnosis of Alzheimer’s disease a secret, one can infer from his family’s statement that stigma was a big factor.
Walking (indoors and outdoors) is something we all do freely, every day, without even thinking about it. Moving away from “lock-down” memory care for people living with dementia not only helps alleviate distress, but also affirms and enables everyone’s basic human right to be able to move freely.
Recently, I posted a provocative argument for considering locked doors as physical restraints. I have received many comments about the post; and as promised, I am following up with a second installment (of three), in which I will give some guidelines for those who wish to take up the challenge.
The problem with “restraints” in long-term care is that in most cases the things we do to increase physical safety help us to feel better, but actually decrease the sense of security felt by the person. So it is with locked doors in memory care homes.
Would it surprise you if I said that the very organizations that are discouraging the abuse of antipsychotic drugs to treat people living with dementia are actually convincing people to use them? It’s a matter of language.
As it happens, I received two related news reports from colleagues today. Both concern the current state of affairs with psychotropic drug research, and the dangerous ways in which data is being manipulated and misrepresented.
I have decided to coin a new philosophy around the support of people who live with changing cognitive abilities.
This short and not-too-sweet post is an addendum to my guest editorial that was published here in McKnight’s on Friday, July 24th.
“Hello. My name is Richard, and I have dementia, probably of the Alzheimer’s type.” These are the words Dr. Richard Taylor used to open each of his presentations, as he enlightened the world about the lived experience of changing cognitive ability. Richard passed away at his home on July 25th, due to cancer.
In my last post I criticized the Australian Financial Review for its characterization of people living with dementia, and of our aging population in general. Now that the furor over that article has subsided somewhat, it’s time to tackle that deeper concern.
Last week I came across the most irresponsible, ill-informed, and inflammatory bit of writing I have ever seen on the topic of dementia.
I believe our top priority is to build all inclusive communities, both for our aging population in general, as well as those living with changing cognitive abilities of all kinds. Here’s why:
I promised to follow-up with additional blog posts about my experience at the Alzheimer’s Disease International 2015 conference in Perth, Western Australia. Here is a quick post with full video from my plenary session.
People living with various forms of dementia often exhibit certain signs of emotional upset, which may include anger, sadness, fear, frustration, or anxiety. Have any of you ever experienced these feelings? Maybe you too have dementia!
America has a looming public health crisis. And it also happens to be America’s favorite pastime.
Here are a few “tricks of the trade” designed by Big Pharma to make you spend far more money than you need — buyer beware!
One of my favorite principles of “enlightened leadership” is called “Expect the Best” — a principle that is ignored with alarming regularity in long-term care, on both the provider and the regulator sides.
Given the reality that most people are not currently equipped with the knowledge and resources to implement other solutions, there will be times when the use of medication may need to be considered. So here are some guidelines for those along the journey who have not yet created the infrastructure for an anti-psychotic-free environment.
Recently, a friend who works in long-term care wrote to ask if I had any formal guidelines for prescribing antipsychotic drugs to people living with dementia.
Recently, I was interviewed for an article at Chabad.org about tips for including loved ones living with dementia in Chanukah celebrations. With Christmas fast approaching, it seems appropriate to review a few of those tips here for your upcoming family gatherings.