We have more updates from the Richard Taylor Alzheimer’s video project from participant Mona Johnson of the blog Tangled Neuron:
Earlier this month, several people at the cutting edge of this work came together in snowy Rochester, New York to share ideas and to make a video. A big thank you to Richard Taylor for inviting me to take part, and to Al Power and St. John’s Home for hosting all of us so graciously.
The video is Richard’s brainchild, and will address common questions on dementia and care from his perspective, and from the (sometimes varying) perspectives of the rest of us: Al, Judy Berry (founder of Lakeview Ranch homes), Sarah Rowan (Eden Alternative board member and speaker) and me. Anne Basting and Bill Thomas couldn’t be in Rochester but will contribute their thoughts separately. Richard’s idea is to highlight the variety of our experiences to encourage people with dementia and their care partners to form their own opinions on how to live with dementia.
Judy’s husband Julius Keya is the videographer for this project. Originally from Kenya, he is a talented videographer who has traveled the world working on human rights documentaries. Julius also filmed and edited a video of Richard and Al speaking at St. Cloud University – you can email him at email@example.com to purchase it.
If I had to pick one theme for our discussions in Rochester, it would be how to design care around the needs of each person with dementia, instead of around the needs of an institution or the prescriptions of “experts.” Underpinning that theme was the incredible level of personal caring I saw in Richard, Al, Sarah, Judy and Julius, the people at St. John’s and in the Rochester community.
Al Power has a blog post on the Richard Taylor video project here.